Rare Disease Day 2016 is held on the last day of February. This means it’s on the 29th of February 2016. As Phenylketonuria is one of those rare diseases it’s important to honor this day and remember others about the existence of rare diseases. It’s important you get active yourself. Visit the official Rare Disease Day Website, or your local Rare Disease organization, for more information. We also want to share with you the official Video for the Rare Disease Day 2016.
If you have a moment more to spare we also want to point you to the PKU Day. PKU Day is on June 28th. We hope that may of you join and host activities on this special day for Phenylketonuria. In the mean time enjoy the Rare Disease Day 2016.
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