E.S.PKU Projects

Learn more about the completed and ongoing projects of E.S.PKU

Benchmark Report

Identifying gaps in care for Phenylketonuria across Europe.

Consensus Paper

E.S.PKU delegates publication for the need for common guidelines in Europe!

European Guidelines

PKU experts working on the first European Guidelines for Phenylketonuria.

E.S.PKU Conference 2020

Madrid, Spain from October 29th to November 1st

International PKU Day

Happening on June 28th to raise awareness for Phenylketonuria.

Advocacy Toolkit

Helping E.S.PKU member countries achieve their goals with more efficiency!

E.S.PKU Travel Passport

A document that helps PKU travel with their products and amino acid mixtures.

Sheila Jones Award

The sheila Jones Award is the first patient advocate award, launched in 2018.