About E.S.PKU

E.S.PKU (European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria) was founded in 1987. It is a patient-driven non profit umbrella organization representing PKU organizations across Europe.

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E.S.PKU Conference 2024

Learn more about the upcoming E.S.PKU Conference

Benchmark Report

Closing the gaps in care was the main motivation to create a report comparing treatment in countries. Read more ...

Consensus Paper

E.S.PKU member organizations came together to publish their requirements for PKU treatment. Read more ...


Funded by the E.S.PKU experts are publishing European guidelines for a consistant PKU treatment. Read more ...

Travel Passport

To help making traveling and explaining PKU easier the E.S.PKU has created the travel passport. Read more ...

Sheila Jones Award

A patient advocate award!