Sheila Jones Award

A patient advocate award

since 2018

E.S.PKU Conference 2021

Learn more about the upcoming E.S.PKU Conference

The Story of the "Sheila Jones Award"

The Sheila Jones Award was initiated by the E.S.PKU in 2017 - first awarded in 2018. As there are many awards for professionals and scientists but none for patient advocate E.S.PKU saw the need to initiate this.

The family of Sheila Jones and her families story are stonefly tight to PKU. If you haven't watched the video yet you should do so immediately to understand the importance of her story and this award.

What you need to know ...

Who can be nominated for SJA?

The Sheila Jones Award is an award for patient advocates. This can be individuals, groups or organizations. Not eligible are medical staff or companies or paid staff of PKU Patient Organisations. If you know somebody that is very important in the field of Phenylketonuria and has the role of a patient advocate make sure to submit a nomination. The reason for the nomination can reach from a special project as far as a continuous support for the field of PKU.

What is the submission deadline?

When will the award be presented?

What is the award to win?

What is expected of winners?

Past Winners

2020 - Sanja Peric

2019 - Sengül Kocatürk

2018 - Laura Petreuș