High-quality healthcare for adults with PKU must be a priority, just as it is for children with PKU

gregor.hammerschmidtAnnouncements, PKUDay

“The fact that the benefits from PKU treatment in childhood are ‘clear and immediate’ does not equate that there are no benefits for PKU treatment in adulthood” On June 28th PKU community celebrates International PKU Day. This year, E.S.PKU decided to raise awareness of adults with PKU by running a successful campaign “The Life of adults with PKU”. Throughout June on E.S.PKU social media various statements were published about the challenges of adults with Phenylketonuria.  Since Phenylketonuria (PKU) is diagnosed in the early stages of life (nowadays in newborn screening), it has traditionally been perceived as a childhood disease. The …

PKU DAY 2024: E.S.PKU advocates for all, not just children

gregor.hammerschmidtPKUDay

‘You’re dead if you aim only at kids. Adults are kids grown up anyways.’[1] Every year, June 28th is celebrated in the PKU Community as it is  International PKU Day. The popularity of this day is increasing every year. For 2024, the E.S.PKU has decided to use this day to raise awareness about the lives of adults with Phenylketonuria. In 2013 in Antwerp E.S.PKU delegates decided to initiate a day to raise awareness about Phenylketonuria. They decided that International PKU Day would be celebrated on June 28th every year. This day is also a celebration of the legacy of two …

PKUDay 2018

gregor.hammerschmidtPKUDay

International PKU Day is taking place on June 28th. This year once again marks a special year for this important day for Phenylketonuria.  It’s time to celebrate 100th birthday of Horst Bickel. As one of the grounding farther for the PKU diet the E.S.PKU has published the report “The three landmarks of phenylketonuria” once again. You can find it on the official PKUDay website: https://www.pkuday.org/about/pku-day-2018/. Of course you are very keen to learn more about your plans for International PKU Day. Getting it online on the PKUDay website will increase the attention for it – it’s easy – just contact the …