E.S.PKU 2015 Conference Experiences

gregor.hammerschmidt Conferences

We are looking back at a very successful E.S.PKU conference 2015. As you might have seen there are quite a lot of official videos available for our conference 2015 in Berlin, Germany. If you haven’t seen them yet – or want to watch them again – they are all linked on our conference page. There you can also experience a lot more about the conference. But of course there aren’t just our conference experiences, but those of participants. We are happy that this year we had some attendees who brought along their own cameras, blogs, etc. to capture their experience with the …

Video source missing

European Phenylketonuria – PKU Guidelines

gregor.hammerschmidt Announcements, Publications

The European Guidelines for Phenylketonuria is one of the latest projects funded by E.S.PKU. The project was started after the publication of the consensus paper, written by delegates of E.S.PKU, showing the needs and wishes for guidelines. Under the lead of Professor Francjan J. van Spronsen and E.S.PKU SAC (scientific advisory committee) those independent PKU guidelines have been developed, with the help of about 20 professionals, experts in PKU, over the past three years. At the annual E.S.PKU conference 2015 in Berlin, Germany- excerpts from these guidelines were presented to the professionals as well as parents/patients. One of the main aims of the Guidelines is that they …

Passing of Ass. Prof. Flemming Güttler, M.D., Ph.D.

gregor.hammerschmidt General

We are mourning the passing of the former chairman of the ESPKU Scientific Advisory Committee Ass. Prof. Flemming Güttler, M.D., Ph.D. On December 30th 2015, Flemming Güttler passed away at the age of 81. Officers and members of ESPKU remember him being an active Chairman of the ESPKU Scientific Advisory Committee from 1988 until 2000. With his professional experience and his great personal commitment he helped ESPKU connect to professionals and patients from all over Europe and to make our Society well known and accepted in the scientific world. It was his passion to prevent the devastating outcomes of untreated …

E.S.PKU & PKUBoard present: PKU Travel Network

gregor.hammerschmidt Announcements

In the past E.S.PKU has been approached to set up a travel network for PKU patients. In order to achieve this goal we have partnered with PKUBoard1, an online messaging board. There are two reasons why E.S.PKU has decided to work together with PKUBoard on this matter: The E.S.PKU website is an information page and does not allow member registration Besides the conference E.S.PKU does not interact with patients directly, but offers an umbrella organization to it’s members (local organizations) The travel network has been introduced at the annual E.S.PKU Conference 2015 at the patients session. Here you can get the idea in …

Travelling to the E.S.PKU Conference 2015

gregor.hammerschmidt Conferences

Dear participants of the 2015 E.S.PKU Annual Conference, In a few days we will meet to one of the biggest PKU Events of the year, the ESPKU Annual Conference 2015 in Berlin. To make your travel as convenient as possible, please find attached some information about how to get to the conference hotel from the Station Schönefeld-Airport or from the airport itself. Those who are accommodated in the InterCityHotel Berlin-Brandenburg Airport, here is the address: Am Seegraben 2, 12529 Berlin-Schönefeld, Tel.: +49 30 756 5751-0 This hotel is located directly opposite to the airport Berlin-Schönefeld. If you arrive at Schönefeld station, …

Review of EU legislation on dietary food

gregor.hammerschmidt General

Review of EU legislation on dietary food could mean a significant backward step for the treatment and management of Phenylketonuria (PKU) On March 28th, 2105 the Spring Meeting of the European Society for Phenylketonuria and Allied Disorders took place in Berlin, Germany. 24 delegates from 13 national PKU Associations took part and discussed the latest political developments. PKU patients have to follow a strict low protein diet supplemented by an amino acid replacement. They have to calculate the intake of Phenylalanine to avoid any health problems related to the disease. Therefore quantitative labelling of Phenylalanine is crucial for their daily …