E.S.PKU launches PKU Life Stories Campaign

Today, the European Society for Phenylketonuria and Allied Disorders Treated as Phenylketonuria is launching The PKU Life Stories campaign. As part of this initiative, interviews will be published featuring individuals with Phenylketonuria, parents of people with Phenylketonuria, as well as partners, spouses, and family members of those living with the condition. Each participant will share their story, providing insights into their lives and the impact PKU has had on them. The goal of this campaign is to showcase what life with Phenylketonuria looks like and explore the many ways it can unfold. 

Florentina

The first interview that E.S.PKU will publish as part of the campaign will be with Florentina Baričević. Florentina is an adult living with Phenylketonuria (PKU). Originally from Croatia, she now resides in the Netherlands, where she has built both her personal and professional life. Florentina works as an Occupational Therapist and is actively involved in the Croatian PKU Association, where she supports the PKU community by advocating for greater awareness, better care, and more resources for individuals and families affected by the condition. Subsequent interviews will be published at a later time.