Situation of refugee rare metabolic disorder patients (Updated)

According to UNHCR data, currently there are more than 65.000.000 people fleeing from war, conflicts and persecution, as much as never before in history. About 20.000.000 people left their native countries and seek shelter abroad, most of them in Europe. It is a matter of fact that there are a significant number of people amongst these refugees, who suffer from any diagnosed or even undiagnosed rare disease, such as Phenylketonuria (PKU) or other treatable metabolic disorders. All signatory states of the Convention of the United Nations on the rights of persons with disabilities are committed “to take all necessary measures … Continue reading Situation of refugee rare metabolic disorder patients (Updated)