Last Updated: May 29th

31st E.S.PKU Conference 2017

Hell, Norway – October 5th to October 8th

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Hell Conference Center
Salty PKU Bread

Conference Newsletter

E.S.PKU Conference Newsletter
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History?

Learn more about the past E.S.PKU Conferences!

Timeline

Oktober 2017

The Conference will take place a bit earlier then usual from October 5th to October 8th

Hell, Norway

We will be joining the Norwegian PKU “Den Norske PKU-forening” assosiation in Hell, Norway (near Trondheim).

Program Highlights

Common program for all attendees

Jens Joergensen: Care for PKU in Norway
Geir Ivar Elgjo Følling: PKU – where it all started
Olve Moldestad, PhD: How to comfort families with an inborn error of metabolism and keep them comfortable
Yngve Thomas Bliksrud, MD.: Tyrosinemia Type I
Kristina Motzfeld, RD: Breastfeeding in PKU and Tyrosinemia Type I
Prof. Dr. Francjan J. van Spronsen: Can PKU and Tyrosinemia Type I help each other?
ESPKU Board: ESPKU: The Information Gap – Inspiration to go home with

Program for professionals

Shawn Christ, Ph.D.: PKU and the Brain. Looking beyound the white matter
Prof. Dr. Beat Thöny: Is all PKU due to PAH deficiency?
Prof. Aurora Martinez: New chaperones in PAH deficiency
Roberto T. Zori, MD.: Pegvaliase – Results and challenges
Anita MacDonald, PhD, BSc: Nutritional resemblances between PKU and Tyrosinemia Type I
Willem G. van Ginkel, MSc: Neurofunctional resemblances between PKU and Tyrosinemia Type I

Program for patients and their families

Dr. Akram Asfour: Status and challenges in Gaza and Egypt
Agata Bak: Fundraising to support Gaza PKU children
Sigurbjörg Olafsdottir: Growing up with PKU in Iceland
Roxana Cordea: My PKU Story in Romania
Marketa Rysalva: Travelling / living with PKU in other countries
Louise Healy: LiveLifeWell – Austrailian IMD programme

Program for ESPKU member’s delegates

Country update: What has been achieved since 2016?
Why should patients associations get involved in the METAB-ERN?
Transition: What do we require and how can we achieve improvements?
Educational Workshop: How to build alliances and partnerships
ESPKU General Meeting

This programme overview is preliminary and subject to change.

Conference Registration


Single Room

€370

Per Person
  • Conference Participation
  • Accommodation
  • Children *
Register

Ticket Only

€160

Per Person
  • Conference Participation
  • Accommodation
  • Children *
Register

* Children 3-12y can be booked additionally to adults in an Double / Family Room for 140€. Children 0-2y are free. There is no reduced cost for children when booking the conference ticket only.

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