Last Updated: May 29th
31st E.S.PKU Conference 2017
Hell, Norway – October 5th to October 8th
Want to find out more about E.S.PKU conferences?You can read all the essence of an E.S.PKU conference here.
Learn more about the past E.S.PKU Conferences!Timeline
The Conference will take place a bit earlier then usual from October 5th to October 8th
We will be joining the Norwegian PKU “Den Norske PKU-forening” assosiation in Hell, Norway (near Trondheim).
Common program for all attendees
Jens Joergensen: Care for PKU in Norway
Geir Ivar Elgjo Følling: PKU – where it all started
Olve Moldestad, PhD: How to comfort families with an inborn error of metabolism and keep them comfortable
Yngve Thomas Bliksrud, MD.: Tyrosinemia Type I
Kristina Motzfeld, RD: Breastfeeding in PKU and Tyrosinemia Type I
Prof. Dr. Francjan J. van Spronsen: Can PKU and Tyrosinemia Type I help each other?
ESPKU Board: ESPKU: The Information Gap – Inspiration to go home with
Program for professionals
Shawn Christ, Ph.D.: PKU and the Brain. Looking beyound the white matter
Prof. Dr. Beat Thöny: Is all PKU due to PAH deficiency?
Prof. Aurora Martinez: New chaperones in PAH deficiency
Roberto T. Zori, MD.: Pegvaliase – Results and challenges
Anita MacDonald, PhD, BSc: Nutritional resemblances between PKU and Tyrosinemia Type I
Willem G. van Ginkel, MSc: Neurofunctional resemblances between PKU and Tyrosinemia Type I
Program for patients and their families
Dr. Akram Asfour: Status and challenges in Gaza and Egypt
Agata Bak: Fundraising to support Gaza PKU children
Sigurbjörg Olafsdottir: Growing up with PKU in Iceland
Roxana Cordea: My PKU Story in Romania
Marketa Rysalva: Travelling / living with PKU in other countries
Louise Healy: LiveLifeWell – Austrailian IMD programme
Program for ESPKU member’s delegates
Country update: What has been achieved since 2016?
Why should patients associations get involved in the METAB-ERN?
Transition: What do we require and how can we achieve improvements?
Educational Workshop: How to build alliances and partnerships
ESPKU General Meeting
This programme overview is preliminary and subject to change.
€370Per Person Register
Double / Family Room Most Popular!
€270Per Person Register
€160Per Person Register
* Children 3-12y can be booked additionally to adults in an Double / Family Room for 140€. Children 0-2y are free. There is no reduced cost for children when booking the conference ticket only.