E.S.PKU is pleased to announce the publication of European PKU Guidelines at a Glance, a comprehensive collection of 11 evidence-based infographics designed to make the latest European PKU Guidelines for the diagnosis and management of Phenylketonuria (PKU) more accessible and easier to implement in everyday practice.
Developed by an international multidisciplinary team of experts, the infographics translate the revised European PKU Guidelines into clear, practical visual resources for healthcare professionals, policymakers, patient organisations, people living with PKU and their families. The infographic collection covers the full spectrum of lifelong PKU care, including dietary management, blood phenylalanine monitoring, neuropsychological assessment, pharmacological treatment, maternal PKU, transition from paediatric to adult care, and other essential aspects of evidence-based clinical practice.
Recognising the importance of ensuring these recommendations reach the PKU community as quickly as possible, E.S.PKU provided early access to the infographic collection to delegates of its member organisations. To further support the dissemination of the infographics E.S.PKU has also launched a dedicated social media campaign. Over the coming days, each infographic will be presented individually across our communication channels, highlighting one topic at a time and encouraging discussion around evidence- based PKU care. Through this campaign, we hope to increase awareness of the Guidelines and promote their use among healthcare professionals, patient organisations and the wider PKU community.
E.S.PKU encourages healthcare professionals, clinical leaders, health authorities and policymakers to use the infographic collection to support evidence-based clinical practice, service planning and decision-making. Patient organisations are encouraged to use these resources to strengthen education, advocacy and dialogue with healthcare professionals and
decision-makers, helping ensure that people living with PKU have access to care that reflects the latest European PKU Guidelines.
Ultimately, the value of clinical guidelines lies not only in their publication but in their
implementation. By making evidence-based recommendations easier to understand and
apply, European PKU Guidelines at a Glance provides a practical resource to support more
consistent, high-quality PKU care across Europe.
Explore the complete infographic collection
https://www.espku.org/envira/guidelines-infographics/
Read the full European PKU Guidelines publication
https://www.sciencedirect.com/science/article/pii/S1096719225001167